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Whether this is the first time you have had to stop work because of your M.E. or you are having a relapse, it can be hard both on your pocket and your confidence.
…for the first time
Whether or not your range of symptoms have been diagnosed as M.E./ chronic fatigue syndrome or post viral fatigue syndrome you may find that you can no longer cope with your day to day work. Recognising that you have an illness can be the first step in acknowledging that you need to slow down and take some time out.
If you are experiencing M.E. symptoms, don't keep pushing yourself believing that you can work through the illness. Without doubt the illness will continue to debilitate you and you'll feel worse.
Take a look at 'what does it feel like' if you are unsure about your symptoms and consult your GP, as they will be required to complete your medical certificate (sick note) stating you are too ill to work.
…experiencing a relapse
A relapse can happen for many reasons, but it often caused by trying to do too much, you know when your body is telling you to slow down. Only you know what these signs are and, as you also know, it's best not to ignore them. Don't work on until you collapse, as it'll take much longer to recover. Having a relapse is a frustrating and worrying time, check out 'relapses' for top tips.
If you have a flexible working arrangement you may be able to arrange to reduce your workload for a period of time while you rest. Alternatively stopping altogether might be the only way you can give your body the chance to recover.
Relationships with your employer
If you have concerns about your employer's attitude towards your illness, you may find it helpful to talk to an adviser at your local Citizens Advice Bureau, or to the government's employment advice body ACAS.
Most employees will be entitled to a period of sick leave - check your employment contract for details of your workplace arrangements. If you are still unable to work after the period of your sick leave ends, you may qualify for statutory sick pay from the government.
For advice on benefits check out our guide to benefits information sheet.
Relationships with your colleagues
Having to scale back your job, or leave work altogether can affect you psychologically. You may feel isolated from friends, especially if you usually socialise with your work colleagues. When you feel up to it try to keep in contact with work friends by telephone or email, and encourage them to visit you. If you hope to go back to the same job, keeping in touch will make your return to work smoother and less stressful, both personally and professionally.
Paperwork
If you send letters, forms or medical certificates it is advisable to keep copies for future reference. If you are a member of Action for M.E. (and over 18) you can use the Welfare Rights Helpline to get advice and information when completing forms, going for medical assessments, appealing against a decision or anything to do with your benefit. See the inside cover of InterAction magazine for the phone number and opening times.
For further advice check our useful links for a list of organisations.
Information produced May 2004
