Symptoms |
Elle, 16
"learn to do things in stages"
"Having M.E. has affected my daily life in many ways. I have many symptoms, mostly headaches and tiredness. I have had a headache for three years, ever since I first became acutely ill.
I can’t cope with any noise, so it’s hard to socialise or even talk. I’m so tired, I can’t really leave the house. If I ever do, I use a wheelchair. I find it hard to sit up or walk around the house, so I spend most of my time in bed.
I also find it very difficult to concentrate. I can’t read books and have to listen to audio-tapes in bits. This makes it very hard to study. My speech is affected too, as I forget what I'm talking about. I get muscle pain, all over from time-to-time and constantly in my right wrist, so I can’t write letters. All this means I can’t really go out much. I'm also sensitive to light and noise, which means I have to have my curtains shut, and people often have to whisper around me. Another thing is that sometimes I’m too hot and sometimes I’m too cold.
For most of my symptoms there is not a lot you can do. I find that a bag filled with wheat that you heat up in the microwave is useful and can slightly relieve my headaches and warms me up. I think, if you are like this, you just have to learn to do things in stages".
Find out more about what it feels like to have M.E.